Our Membership

Our members, or “sites”, are medical institutions equipped to perform clinical trials in Amyotrophic Lateral Sclerosis (ALS) and motor neuron diseases. 

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Coordinating Centers

NEALS research and training activities are managed from our two “Coordinating Centers”, located at Massachusetts General Hospital and Barrow Neurological Institute. The Coordinating Centers are responsible for the management and conduct of "NEALS-affiliated" trials. When a trial is considered to be "NEALS-affiliated", it means that the sponsor of the trial has contracted NEALS Coordinating Centers to help conduct the trial. A sponsor may contract NEALS to manage an entire trial or just a portion of the work.

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NEALS Committees

NEALS has established various subcommittees focused on advancing ALS research and patient care. These ad hoc committees are established by the Executive Committee, as needed, or by membership proposal. Subcommittees are chaired by NEALS members and required to meet quarterly. All NEALS members are encouraged to join and contribute to these focus groups. Click here to view a full list of NEALS Committees.

NEALS Leadership

NEALS is governed by an Executive Committee. Each member brings a depth of experience and a unique perspective to the governance of NEALS. Our research activities are also advised by an experienced Scientific Advisory Board.

  • Jinsy A. Andrews, MD, MSc Co-Chair
  • Richard Bedlack, MD, PhD Investigator Representative
  • Robert Bowser, PhD Scientific Advisory Board Member
  • Robert H. Brown, Jr. MD, DPhil Scientific Advisory Board Chair
  • Allison Bulat PALS/CALS Advisor
  • Merit Cudkowicz, MD, MSc NEALS Coordinating Center Chair and Scientific Advisory Board Member
  • Jonathan D. Glass, MD Scientific Advisory Board Member
  • Matthew Harms, MD Investigator Representative
  • Nicholas J. Maragakis, MD Scientific Advisory Board Member
  • Pamela Kittrell, MSN, RN, CCRC Clinical Coordinator Representative
  • Clotilde Lagier-Tourenne, MD, PhD Scientific Advisory Board Member
  • Timothy M. Miller, MD, PhD Co-Chair and Scientific Advisory Board Chair
  • Sabrina Paganoni, MD, PhD Investigator Representative
  • Emily Plowman, PhD Clinical Evaluator Representative
  • Jeffrey D. Rothstein, MD, PhD Scientific Advisory Board Chair
  • Jeremy Shefner, MD, PhD NEALS Outcomes/Monitoring Center Chair and Scientific Advisory Board Member
  • Zachary Simmons, MD Investigator Representative