Our Membership

Our members, or “sites”, are medical institutions equipped to perform clinical trials in Amyotrophic Lateral Sclerosis (ALS) and motor neuron diseases. 

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Coordinating Centers

NEALS has developed a strong infrastructure that facilitates rapid institution and support of trials sponsored by industry, foundations, and federal granting agencies. The NEALS Coordinating Centers include the Clinical Coordination Center (CCC) and the Data Coordination Center (DCC) located at the Neurological Clinical Research Institute at Massachusetts General Hospital (MGH-NCRI), as well as the Outcomes and Monitoring Center at Barrow Neurological Institute. A sponsor may contract with a NEALS Coordination Center to manage an entire trial or just a portion of the work.

A study does not need to utilize NEALS Coordinating Centers to be considered a NEALS-Affiliated Trial.

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NEALS Committees

NEALS has established various subcommittees focused on advancing ALS research and patient care. These ad hoc committees are established by the Executive Committee, as needed, or by membership proposal. Subcommittees are chaired by NEALS members and required to meet quarterly. All NEALS members are encouraged to join and contribute to these focus groups. Click here to view a full list of NEALS Committees.

NEALS Leadership

NEALS is governed by an Executive Committee. Each member brings a depth of experience and a unique perspective to the governance of NEALS. Our research activities are also advised by an experienced Scientific Advisory Board.

  • Jinsy A. Andrews, MD, MSc Co-Chair
  • Richard Bedlack, MD, PhD Investigator Representative
  • James Berry, MD, MPH Co-Chair
  • Robert Bowser, PhD Scientific Advisory Board Member
  • Robert H. Brown, Jr. MD, DPhil Scientific Advisory Board Chair
  • Allison Bulat PALS/CALS Advisor
  • Merit Cudkowicz, MD, MSc NEALS Coordinating Center Chair and Scientific Advisory Board Member
  • Jonathan D. Glass, MD Scientific Advisory Board Member
  • Matthew Harms, MD Investigator Representative
  • Nicholas J. Maragakis, MD Scientific Advisory Board Member
  • Gale Kittle, RN, MPH Clinical Evaluator Representative
  • Pamela Kittrell, MSN, RN, CCRC Clinical Coordinator Representative
  • Clotilde Lagier-Tourenne, MD, PhD Scientific Advisory Board Member
  • Timothy M. Miller, MD, PhD Scientific Advisory Board Chair
  • Sabrina Paganoni, MD, PhD Investigator Representative
  • Jeffrey D. Rothstein, MD, PhD Scientific Advisory Board Chair
  • Jeremy Shefner, MD, PhD NEALS Outcomes/Monitoring Center Chair and Scientific Advisory Board Member
  • Zachary Simmons, MD Investigator Representative