Familial Amyotrophic Lateral Sclerosis (FALS) Study
The goal of this study is to identify families with Amyotrophic Lateral Sclerosis (ALS). In addition, the investigators will identify families with ALS who may be eligible for the pre-fALS study or a clinical trial of arimoclomol in SOD1 positive familial ALS. For details of these studies, see independent entries on clincialtrials.gov.
Disease:Healthy Volunteer with a Family History of ALS
Study Type:Observational Study
Study Chair(s)/Principal Investigator(s):
Michael Benatar, MD, PhD. (University of Miami)
Clinicaltrials.gov ID (11 digit #):NCT00136500
Coordinating Center Contact InformationUniversity of Miami Miller School of Medicine
1120 NW 14 Street, STE 1312
Miami, Florida 33136 United States
Full Study Summary:
Participation in this study involves a telephone conversation in which the investigators will draw your family tree, identifying those relatives who have had or currently have ALS. The investigators would also like study participants to donate a blood sample for research purposes.
Study Sponsor:Muscular Dystrophy Association
Estimated Study Start Date:02/01/2005
Estimated Study Completion Date:12/31/2027
Posting Last Modified Date:01/11/2018
Date Study Added to alsconsortium.org:11/01/2011
Time since Symptom Onset:N/A
Time since Diagnosis:N/A
Can participants use Riluzole?
Having two or more family members who have or have had ALS
No family history of more than one family member having ALS
- Site Contact Information