The National Amyotrophic Lateral Sclerosis Registry
Study Purpose:
The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.
Disease:
Amyotrophic Lateral Sclerosis (ALS), Familial ALS, Sporadic ALSStudy Type:
Observational StudyStudy Category:
EpidemiologyStudy Status:
EnrollingPhase:
Not ApplicableStudy Chair(s)/Principal Investigator(s):
Paul Mehta, MD, Centers for Disease Control and Prevention
Clinicaltrials.gov ID (11 digit #):
NCT01772602Neals Affiliated?
NoCoordinating Center Contact Information
CDCPaul Mehta, MD / .(JavaScript must be enabled to view this email address) / 770-488-0556
Kevin Horton, DrPH, MSPH / .(JavaScript must be enabled to view this email address) / 770-488-1555
Atlanta, Georgia 30333 United States