Clinical Procedures to Support Research in ALS (CAPTURE-ALS)
Study Purpose:
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.
Disease:
Amyotrophic Lateral Sclerosis (ALS), Familial ALS, Sporadic ALS, Primary Lateral Sclerosis (PLS)Study Type:
Observational StudyStudy Category:
Study Status:
EnrollingPhase:
Not ApplicableStudy Chair(s)/Principal Investigator(s):
Michael Benatar, University of Miami
Clinicaltrials.gov ID (11 digit #):
NCT03489278Neals Affiliated?
NoCoordinating Center Contact Information
University of MiamiMichael Benatar, MBChB, MS, DPhil / .(JavaScript must be enabled to view this email address) / 844-837-1031
Sumaira Hussain / .(JavaScript must be enabled to view this email address) Miami, Florida 33136 United States
Full Study Summary:
The study will consent patients with ALS or related disorders that are receiving care at a clinical center in the CReATe consortium that uses Epic as its electronic health record (EHR) system. The study aims to systematically gather a clinical dataset through the EHR using a standardized approach to characterize the natural history of ALS and related diseases.