Survey of communication methods, interventions, and participation for people with ALS
This study involves a one-time survey being conducted to learn more about the communication methods used by people with ALS, how they learn about their options for communication, and how they participate in various communication situations.
Disease:Amyotrophic Lateral Sclerosis (ALS), Familial ALS, Sporadic ALS
Study Type:Observational Study
Study Status:Not enrolling
Study Chair(s)/Principal Investigator(s):
Betts Peters, MA, CCC-SLP (Oregon Health & Science University)
Melanie Fried-Oken, PhD, CCC-SLP (Oregon Health & Science University)
Clinicaltrials.gov ID (11 digit #):
Coordinating Center Contact InformationOregon Health & Science University
Mail Code: CDRC
Portland, Oregon 97202 USA
Full Study Summary:
The purpose of this study is to learn more about the communication methods used by people with ALS, how they learn about their options for communication, and how they participate in various communication situations. The information gathered for this study will be used to help improve the communication options and communication support services available to people with ALS. We want to hear from all people with ALS, regardless of whether they have experienced speech changes, or what methods they use for communication. To learn more about the study, please view our introductory video at https://youtu.be/Ku4mKxtwezc.
This one-time survey will take approximately 30-60 minutes, and can be completed online using a computer or smartphone. A paper version is also available. Responses will be kept anonymous. To take the survey or learn more about the study, please contact Betts Peters at firstname.lastname@example.org or 503-494-2732.
This study involves a one-time survey (available online or by mail) that will take approximately 30-60 minutes.