Trial News & Events

HEALEY ALS Platform Trial Webinar with ALSA

Please join us on Tuesday, September 29th at 5:00 pm EST for an update on the HEALEY ALS Platform Trial and remarks from Kuldip Dave of the ALS Association.

NEALS ALS GAP Update

The NEALS ALS GAP (ALS Genetic Access Program) provides clinical genetics services to pALS who are under the care of a registered NEALS clinician.

NEALS COVID-19 Statement

As the COVID-19 situation continues to evolve, we know it is of particular concern for the ALS community, both for clinical care and research trials.

ALS clinical research learning institutes (ALS-CRLI)

Patient engagement in research is increasingly recognized as important across many countries and fields. In 2008, we conducted surveys that suggested a need for improved patient engagement in ALS research. We decided to create an ALS Clinical Research Learning Institute (ALS-CRLI) to facilitate direct interactions between researchers and people with ALS and their caregivers, toward ultimately improving engagement.