NEALS 2020 Principal Investigator Training Seminar
NEALS is pleased to announce a full day training session for investigators interested in developing and conducting multi-center ALS clinical trials as Principal Investigators.
Trial News & Events
Inaugural Mass General Hospital HEALEY Center International Prize for Innovation in ALS
The Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital (MGH) awarded the inaugural annual Healey Center International Prize for Innovation in amyotrophic lateral sclerosis (ALS) to the team that brought to trial the first antisense oligonucleotide (ASO) therapy for ALS.
ALS clinical research learning institutes (ALS-CRLI)
Patient engagement in research is increasingly recognized as important across many countries and fields. In 2008, we conducted surveys that suggested a need for improved patient engagement in ALS research. We decided to create an ALS Clinical Research Learning Institute (ALS-CRLI) to facilitate direct interactions between researchers and people with ALS and their caregivers, toward ultimately improving engagement.
Common Mutation in IL6R Gene May Mark More Severe and Faster Progressing ALS, Study Says
People with amyotrophic lateral sclerosis with a common mutation in the interleukin 6 receptor (IL6R) gene appear likely to have more severe disease symptoms and faster progression than ALS patients without this inherited gene variant, a study reports.
Sean M. Healey & AMG Center for ALS at Mass General launches first ALS Platform Trial
The Sean M. Healey & AMG Center at Mass General will launch the first platform trial for amyotrophic lateral sclerosis (ALS) to accelerate the development of effective and breakthrough treatments for people with ALS.
ALS GAP Update
Due to the success of the ALS GAP pilot program, NEALS has raised additional funds to continue this service.
Meet the Experts Webinar
The Robert Packard Center and Answer ALS will host a joint Meet the Experts webinar on Thursday, May 30 at 2:00pm. Featuring Jennifer Roggenbuck, MS, LGC (Ohio State University) and Sami Barmada, MD, PhD (University of Michigan).
Call for Nominations: 2019 NEALS CRLI
Nominations are now being accepted for the 2019 Clinical Research Learning Institute!
NEALS at the AAN
Members are welcome to join us on Tuesday, May 7th from 07:15am - 08:15am for a NEALS Consortium satellite meeting at the 71st American Academy of Neurology Annual Meeting!
NEALS Launches ALS Genetic Access Program
The NEALS ALS Genetic Access Program (ALS GAP) provides clinical genetics services to pALS who are under the care of a registered NEALS clinician. Funded by the Muscular Dystrophy Association, The ALS Association, and Biogen, and administered by NEALS, this program includes clinical genetic testing and genetic counseling via telemedicine. There is no cost to the patient or clinic.