Trial News & Events

NEALS ALS GAP Update

The NEALS ALS GAP (ALS Genetic Access Program) provides clinical genetics services to pALS who are under the care of a registered NEALS clinician.

NEALS COVID-19 Statement

As the COVID-19 situation continues to evolve, we know it is of particular concern for the ALS community, both for clinical care and research trials.

ALS clinical research learning institutes (ALS-CRLI)

Patient engagement in research is increasingly recognized as important across many countries and fields. In 2008, we conducted surveys that suggested a need for improved patient engagement in ALS research. We decided to create an ALS Clinical Research Learning Institute (ALS-CRLI) to facilitate direct interactions between researchers and people with ALS and their caregivers, toward ultimately improving engagement.

ALS GAP Update

Due to the success of the ALS GAP pilot program, NEALS has raised additional funds to continue this service.
 

Meet the Experts Webinar

The Robert Packard Center and Answer ALS will host a joint Meet the Experts webinar on Thursday, May 30 at 2:00pm.  Featuring Jennifer Roggenbuck, MS, LGC (Ohio State University) and Sami Barmada, MD, PhD (University of Michigan).