Trial News & Events

2015 International Symposium on ALS/MND

The 26th International Symposium on ALS/MND was held December 11th – 13th in Orlando, Florida.  Over 800 researchers and clinicians attended the three-day meeting, with many also taking part in the 23rd Annual Meeting of the International Alliance of ALS/MND Associations preceding the Symposium.
The ALS/MND Symposium highlights the latest scientific discoveries and advances in ALS research and care, while also providing a space for the cultivation of new international collective research efforts.  Participation in the events demonstrates the global commitment of attendees to make a difference in the fight against ALS and motor neuron disease.  Of the 200-plus posters presented during the event, over 58 were submitted by NEALS members.  You can find all of the abstracts from the Symposium here.  The abstracts are available open-access and are all free to download.
A number of NEALS members chaired the daily sessions, and even more presented during the meeting. Among the presenters were:
Pat Andres (Prospective, longitudinal study comparing three outcomes measures)
Nazem Atassi (Advances in PET imaging in ALS and related conditions)
Rick Bedlack (How common are ALS plateaus and reversals?)
Michael Benatar (Pre-symptomatic ALS genetic counseling and testing: Experience and recommendations)
Benjamin R. Brooks (Adaptive design single center phosphodiesterase type 4 (PDEA) inhibitor. Phase 1b/2aclinical trial)
Orla Hardiman (Multidisciplinary case in ALS: measuring the immeasurable?)
Robert Miller (Multi-center diaphragm pacing post FDA approval study enrolment complete: Favorable procedural success, interim safety and survival findings)
Emily Plowman (Discriminate ability of the eating assessment tool for predicting aspirations; and A randomised sham control trial of EMST on bulbar function)
John Ravits (Understanding disease progression in ALS)
Richard Smith (The experimental treatment of bulbar symptoms in ALS with Nuedexta)
Michael Strong (Amyotrophic lateral sclerosis and frontotemporal dementia: understanding the spectrum)
Clive Svendsen (Stem cell treatment strategies for neurodegenerative disease: from hype to hope?)
Rup Tandan (Hydration status, disease progression and survival in ALS patients)
NEALS Co-Chair Terry Heiman-Patterson, MD, was awarded this year's Forbes Norris Award.  Dr. Heiman-Patterson is Professor and Vice Chair of the Department of Neurology at Drexel University College of Medicine, and Medical Director at the MDA/ALS Center of Hope.  This prestigious award is given to the physician thought by his/her peers to have shown exceptional care and compassion in the study and management of ALS/MND.  This award, first presented in 1994, was inaugurated by the International Alliance of ALS/MND Associations in memory of Dr. Forbes (Ted) Norris, a neurologist dedicated to helping people with ALS/MND.

The 27th International Symposium on ALS/MND will be held in 2016 in Dublin, Ireland.