Trial News & Events

28th International Symposium on ALS/MND

The 28th International Symposium on ALS/MND was held December 11th – 13th in Orlando, Florida.  Over 800 researchers and clinicians attended the three-day meeting, with many also taking part in the 23rd Annual Meeting of the International Alliance of ALS/MND Associations preceding the Symposium.

The ALS/MND Symposium highlights the latest scientific discoveries and advances in ALS research and care, while also providing a space for the cultivation of new international collective research efforts.  Participation in the events demonstrates the global commitment of attendees to make a difference in the fight against ALS and motor neuron disease.   Of the 200-plus posters presented during the event, over 58 were submitted by NEALS members.  You can find all of the abstracts from the Symposium here. The abstracts are available open-access and are all free to download.

A number of NEALS members chaired the daily sessions, and even more presented during the meeting.  Among the presenters were:

Pat Andres (Prospective, longitudinal study comparing three outcomes measures)

Nazem Atassi (Advances in PET imaging in ALS and related conditions)

Rick Bedlack (How common are ALS plateaus and reversals?)

Michael Benatar (Pre-symptomatic ALS genetic counseling and testing: Experience and recommendations)

Benjamin R. Brooks (Adaptive design single center phosphodiesterase type 4 (PDEA) inhibitor. Phase 1b/2aclinical trial)

Orla Hardiman (Multidisciplinary case in ALS: measuring the immeasurable?)

Robert Miller (Multi-center diaphragm pacing post FDA approval study enrolment complete: Favorable procedural success, interim safety and survival findings)

Emily Plowman (Discriminate ability of the eating assessment tool for predicting aspirations; and A randomised sham control trial of EMST on bulbar function)

John Ravits (Understanding disease progression in ALS)

Richard Smith (The experimental treatment of bulbar symptoms in ALS with Nuedexta)

Michael Strong (Amyotrophic lateral sclerosis and frontotemporal dementia: understanding the spectrum)

Clive Svendsen (Stem cell treatment strategies for neurodegenerative disease: from hype to hope?)

Rup Tandan (Hydration status, disease progression and survival in ALS patients)

Merit Cudkowicz, MD, Chief of Neurology at Massachusetts General Hospital and Co-Founder of NEALS, received the prestigious Forbes Norris Award.  This award was first presented in 1994 by the International Alliance of ALS/MND Associations to recognize excellence in the ALS/MND community.  It honors the memory of Dr. Forbes "Ted" Norris (1928-1993), a neurologist who dedicated his career to helping people with ALS/MND.  The purpose of this award is to recognize a combination of two important qualities: management of and advances in our understanding of ALS/MND, to the benefit of people living with the disease.

The 29th International Symposium on ALS/MND will be held in 2018 in Glasglow, Scotland.