Knopp Biosciences, Inc. has agreed to donate placebo data from the phase III dexpramipexole trial to the award-winning PRO-ACT Platform, created by the NCRI and Prize4Life in partnership with NEALS. The dataset will be expanded to include treatment-arm data when research into dexpramipexole for ALS is complete. NCRI and NEALS in collaboration with Prize4life will continue to foster encouraging collaborative partnerships between academia and industry via this valuable resource.
Trial News & Events
Offering imminent hope for those with ALS, Genervon Biopharmaceuticals, an innovative biotechnology company announced today that it has received FDA approval for its broadly inclusive ALS clinical trial. Learn more.
Mass. General Neurological Clinical Research Institute and Prize4Life receive Bio-IT World Award for
The Massachusetts General Hospital (MGH) Neurological Clinical Research Institute (NCRI) and Prize4Life received a Best Practices Award at the 2013 Bio-IT World Conference & Expo for the creation of the PRO-ACT platform. Read the press release.…
March 29th, 2013 An SOD1-related familial ALS trial under the direction of NEALS researchers Timothy Miller, MD, PhD (Washington University School of Medicine) and Merit Cudkowicz (Massachusetts General Hospital) indicates that antisense oligonucleotide delivery to the central nervous system may be a feasible therapeutic strategy in treating ALS.
James D. Berry, MD, MPH, (Massachusetts General Hospital & Harvard Medical School) has received the Richard Olney, MD, Clinician-Scientist Development Award for his investigation of cells in the immune system.
Led by Robert Brown, DPhil, MD (University of Massachusetts) and Jeffery Rothstein, MD, PhD (Johns Hopkins), the SAB met in Boston, MA this past February.
NEALS welcomes Dr. Robert Bowser (Barrow Neurological Institute) and Dr. Tim Miller (Washington University, St. Louis) to the Executive Committee!
A study led by St. Jude Children's Research Hospital has discovered mutations in two genes that lead to the death of nerve cells in ALS and related degenerative diseases.
We have had many inquires regarding the Brainstorm Stem Cell Therapeutics Clinical Trial. Read the US Brainstorm Trial.
PALS, caregivers, scientists, and ALS advocates gave their testimonies to a panel of FDA representatives at the first-ever ALS-specific FDA hearing. Speakers pushed for a partnership to get ALS treatments to PALS as fast as possible. Read the ALS Association.