Trial News & Events

Watch Presentations from the 6th Annual Les Turner Symposium on ALS

At the 6th Annual Les Turner Symposium on ALS and NeuroRepair, sponsored by the Les Turner ALS Research and Patient Center at Northwestern Medicine held in November 2016, a crowd of over 175 attendees learned the latest in ALS research and patient care from experts in the field.

PALS Webinar: A User’s Guide to Genetic Testing in ALS

Join Genetic Counselor and Assistant Professor at The Ohio State Wexner Medical Center, Jennifer Roggenbuck, on January 20th at 2:00 PM EST for a live webinar to learn more about genetic testing in ALS.

Dexter Ang Wins ALS Assistive Technology Prize

2015 NEALS Research Ambassador, Dexter Ang, was awarded the ALS Assistive Technology prize by The ALS Association and Prize4Life during this year's ALS/MND International Alliance Meeting.

27th International Symposium on ALS/MND

Over 53 NEALS members authored posters presented at the 27th International Symposium on ALS/MND; 8 members chaired plenary sessions and 15 NEALS members presented platform presentations.

Use of Genetic Testing in Amyotrophic Lateral Sclerosis by Neurologists

There have been a number of publications describing the important role of genetic counseling in amyotrophic lateral sclerosis (ALS). While such attempts at guiding who should undergo genetic testing are welcome, they are put forth in a vacuum because there are no data on where ALS neurologists stand in terms of genetic testing and counseling for the disease, and in terms of what is considered to be familial and sporadic ALS.

2016 ALS Clinical Research Learning Institute

The 6th Annual ALS Clinical Research Learning Institute (CRLI), sponsored by The ALS Association, was held October 7 – 8, 2016 in Clearwater Beach, Florida.  There were 37 people in attendance, including 11 patient-caregiver pairs, 4 returning research ambassadors and 7 faculty members.