Trial News & Events

Use of Genetic Testing in Amyotrophic Lateral Sclerosis by Neurologists

There have been a number of publications describing the important role of genetic counseling in amyotrophic lateral sclerosis (ALS). While such attempts at guiding who should undergo genetic testing are welcome, they are put forth in a vacuum because there are no data on where ALS neurologists stand in terms of genetic testing and counseling for the disease, and in terms of what is considered to be familial and sporadic ALS.

2016 ALS Clinical Research Learning Institute

The 6th Annual ALS Clinical Research Learning Institute (CRLI), sponsored by The ALS Association, was held October 7 – 8, 2016 in Clearwater Beach, Florida.  There were 37 people in attendance, including 11 patient-caregiver pairs, 4 returning research ambassadors and 7 faculty members. 

Confirmed: ALS Attacks Cognition and Behavior

Writing in the January 27 Neurology online, the study authors distinguished between symptoms of cognitive impairment and behavioral impairment among 274 people with ALS. Read more here.…