The 6th Annual ALS Clinical Research Learning Institute (CRLI), sponsored by The ALS Association, was held October 7 – 8, 2016 in Clearwater Beach, Florida. There were 37 people in attendance, including 11 patient-caregiver pairs, 4 returning research ambassadors and 7 faculty members.
Defining SOD1 ALS natural history to guide therapeutic clinical trial design. Read research paper here.
MGH is seeking 200 PALS and healthy volunteers to participate in a stool collection research study.
Two NEALS Research Ambassadors - Richard Isaacs and Ted Harada – were among the four courageous people honored at the Annual Heroes Luncheon! Read more here.…
Writing in the January 27 Neurology online, the study authors distinguished between symptoms of cognitive impairment and behavioral impairment among 274 people with ALS. Read more here.…
Please join us in congratulating James Berry from Mass General and Peggy Allred from Cedars-Sinai.
Researchers at Oregon State University announced today that they have essentially stopped the progression of ALS, or Lou Gehrig’s disease, for nearly two years in one type of mouse model used to study the disease. Read more here.…
How Frank Verdone finds inspiration through educating people about the disease. Read more here.…
ALS patient Kevin Gosnell brought top doctors together, and now they're pledging to find a treatment in four years. Read more here.…
The new study showed that implanting stem cells that produce neurotrophic factors (MSC-NTF) into either muscle or the intrathecal space surrounding the spinal cord, or both, after 6 months were shown to be safe and associated with only mild and transient adverse effects, principally headache and fever. Read more here.…
