Trial News & Events

27th International Symposium on ALS/MND

Over 53 NEALS members authored posters presented at the 27th International Symposium on ALS/MND; 8 members chaired plenary sessions and 15 NEALS members presented platform presentations.

Use of Genetic Testing in Amyotrophic Lateral Sclerosis by Neurologists

There have been a number of publications describing the important role of genetic counseling in amyotrophic lateral sclerosis (ALS). While such attempts at guiding who should undergo genetic testing are welcome, they are put forth in a vacuum because there are no data on where ALS neurologists stand in terms of genetic testing and counseling for the disease, and in terms of what is considered to be familial and sporadic ALS.

2016 ALS Clinical Research Learning Institute

The 6th Annual ALS Clinical Research Learning Institute (CRLI), sponsored by The ALS Association, was held October 7 – 8, 2016 in Clearwater Beach, Florida.  There were 37 people in attendance, including 11 patient-caregiver pairs, 4 returning research ambassadors and 7 faculty members.