Les Turner Symposium on ALS and NeuroRepair
NEALS co-chair Terry Heiman-Patterson will provide the keynote presentation at the 6th annual symposium on Nov. 7th in Chicago.
Trial News & Events
PALS Webinar: ALS Clinical Trial Pipeline Series - Fall 2016
Join Dr. Merit Cudkowicz, Mass General Hospital, for a webinar on October 26th at 1:00 PM EDT to learn more aobut current and upcoming ALS clinical trials. Register here.
2016 ALS Clinical Research Learning Institute
The 6th Annual ALS Clinical Research Learning Institute (CRLI), sponsored by The ALS Association, was held October 7 – 8, 2016 in Clearwater Beach, Florida. There were 37 people in attendance, including 11 patient-caregiver pairs, 4 returning research ambassadors and 7 faculty members.
NEALS members share their data for progress in ALS research
Defining SOD1 ALS natural history to guide therapeutic clinical trial design. Read research paper here.
Participate Remotely in Microbiome Assessment (MAP ALS)
MGH is seeking 200 PALS and healthy volunteers to participate in a stool collection research study.
The ALS Association Honors Four Courageous People at Annual Heroes Luncheon in Atlanta
Two NEALS Research Ambassadors - Richard Isaacs and Ted Harada – were among the four courageous people honored at the Annual Heroes Luncheon! Read more here.…
Confirmed: ALS Attacks Cognition and Behavior
Writing in the January 27 Neurology online, the study authors distinguished between symptoms of cognitive impairment and behavioral impairment among 274 people with ALS. Read more here.…
NEALS Executive Committee Election Results
Please join us in congratulating James Berry from Mass General and Peggy Allred from Cedars-Sinai.
New therapy halts progression of Lou Gehrig’s disease in mice
Researchers at Oregon State University announced today that they have essentially stopped the progression of ALS, or Lou Gehrig’s disease, for nearly two years in one type of mouse model used to study the disease. Read more here.…
Long Island PALS Accepted as Research Ambassador at Annual NEALS Conference
How Frank Verdone finds inspiration through educating people about the disease. Read more here.…