NEALS Research Ambassador, Brian Parsons, on compassionate care
Parsons, 49, has successfully lobbied for rights of families of terminally ill patients. Read more here.…
Trial News & Events
MediciNova Announces First Advanced ALS Patient Using Non-Invasive Ventilation Support Enrolled in P
MediciNova amended the protocol to expand its recruitment to include advanced ALS patients in the trial, and this amendment was approved by FDA. Read more here.…
Ice Bucket Challenge Benefits ALS Research at Barrow
Researchers at Barrow Neurological Institute have announced the launch of a novel and potentially breakthrough ALS study that is being funded in part by money raised through the challenge. Read more here.…
Divvying Up the Ice-Bucket Dollars: Challenge Speeds Trials, Research
As donors get wet again, Alzforum asks, how is 2014’s ice bucket challenge money being spent? Read more here.…
2015 NEALS Ice Bucket Challenge
NEALS will be participating in the ALS Ice Bucket Challenge again this August and #EveryAugustUntilACure! To keep up the research momentum, please continue to spread ALS awareness and consider making a donation to NEALS in the month of August.
ALS Ice Bucket Challenge Returning This August
Co-founders Pat Quinn and Pete Frates will kick off this year’s ALS Ice Bucket Challenge on July 31 in Boston. Read more here.…
Steve Gleason Act scores victory for ALS patients on Capitol Hill
Steve Gleason’s latest remarkable achievement will soon be headed to the desk of President Barack Obama. Read more here.…
The ALS Association Announces $11.6 Million in New Research Grants to Find Treatments and a Cure for
The research awards announced today include investigator-initiated grants, drug development contracts, Milton Safenowitz Postdoctoral Fellowships and support of the NEALS/TREAT ALS™ Clinical Trials Network. Read more here.…
Ice Bucket Challenge Brings $1.5 Million for ALS Drug Trial
Cytokinetics Inc. said it received $1.5 million to help finance testing of an experimental drug to improve lung function in patients with the devastating neurodegenerative disorder. Read more here.…
New Clinical Pilot Studies Will Use Biomarkers to Speed Therapy Development
The ALS Association and the ALS Finding a Cure Foundation are pleased to announce $3 million in funding for two new Phase II clinical studies through the ALS Accelerated Therapeutics (ALS ACT) initiative. Read more here.…