MediciNova amended the protocol to expand its recruitment to include advanced ALS patients in the trial, and this amendment was approved by FDA. Read more here.…
Researchers at Barrow Neurological Institute have announced the launch of a novel and potentially breakthrough ALS study that is being funded in part by money raised through the challenge. Read more here.…
As donors get wet again, Alzforum asks, how is 2014’s ice bucket challenge money being spent? Read more here.…
NEALS will be participating in the ALS Ice Bucket Challenge again this August and #EveryAugustUntilACure! To keep up the research momentum, please continue to spread ALS awareness and consider making a donation to NEALS in the month of August.
Co-founders Pat Quinn and Pete Frates will kick off this year’s ALS Ice Bucket Challenge on July 31 in Boston. Read more here.…
Steve Gleason’s latest remarkable achievement will soon be headed to the desk of President Barack Obama. Read more here.…
The research awards announced today include investigator-initiated grants, drug development contracts, Milton Safenowitz Postdoctoral Fellowships and support of the NEALS/TREAT ALS™ Clinical Trials Network. Read more here.…
Cytokinetics Inc. said it received $1.5 million to help finance testing of an experimental drug to improve lung function in patients with the devastating neurodegenerative disorder. Read more here.…
The ALS Association and the ALS Finding a Cure Foundation are pleased to announce $3 million in funding for two new Phase II clinical studies through the ALS Accelerated Therapeutics (ALS ACT) initiative. Read more here.…
Mitsubishi Tanabe Pharma Corporation issued a press release on June 26 announcing that it had received approval to use RADICUT (Edaravone) in treating patients with ALS in Japan. The announcement comes after a series of clinical trials in Japan were said to demonstrate that patients receiving the drug showed less functional loss than patients receiving a placebo. We look forward to seeing the data supporting approval in Japan. Read press release here.…
