Trial News & Events

DREAM ALS Stratification Prize4Life Challenge

Prize4Life, Sage Bionetwroks and DREAM are proud to anounce the launch of The DREAM ALS Stratification Prize4Life Challenge. The prize, is a computational challenge inviting bioinformatics, statisiticians, computation geeks and math geniuses to work on the PRO-ACT database and identify meaningful subgroups of ALS patients. The challenge offers a $28000 prize and journal partnership with Nature Biotechnology. Read more here.…

Dr. Maragakis on Q Therapeutics’ FDA Clearance for Clinical Trials with Q-Cells in Patients with ALS

Dr. Nicholas Maragakis, professor at Johns Hopkins University School of Medicine and NEALS member, was a key contributor to the pre-clinical development of Q-Cells. Read what he has to say about this research opportunity. Q Therapeutics announced clearance of its investigational new drug application for phase 1/2a clinical trials with Q-Cells in patients with ALS on June 4, 2015. Dr. Nicholas Maragakis, professor at Johns Hopkins University School of Medicine and NEALS member, was a key contributor to the pre-clinical development of Q-Cells. “This has been an amazing opportunity to be a part of the pre-clinical…

Nominate PALS for the 5th Annual ALS CRLI

NEALS is now accepting nominations for the 2015 ALS Clinical Research Learning Institute in Clearwater Beach, Florida from November 6 - 7, 2015. Learn more about the CRLI and the nomination process. The Northeast ALS Consortium (NEALS) is seeking nominations and self-nominations for this year’s ALS Clinical Research Learning Institute. The ALS Clinical Research Learning Institute, sponsored by the ALS Association’s TREAT ALS initiative, is an intensive two day program dedicated to educating attendees on clinical research and therapy development and empowering this group to be advocates for ALS clinical research. Patients and patient-caregiver pairs…

NEALS Attends 2015 National ALS Advocacy Day and Public Policy Conference

The event which brought together people with ALS, representatives of nearly every major ALS organization, and advocates from across the country, provided a forum to share ALS stories, hear about the latest research opportunities and strategies, and urge Congress to make a difference in the fight against ALS.  The Northeast ALS Consortium (NEALS) was pleased to participate in The ALS Association’s 2015 National ALS Advocacy Day and Public Policy Conference, held in Washington, DC from May 10 through May 12. The event which brought together people with ALS, representatives of nearly every major ALS organization,…

NEALS Attends 2015 National ALS Advocacy Day and Public Policy Conference

The event which brought together people with ALS, representatives of nearly every major ALS organization, and advocates from across the country, provided a forum to share ALS stories, hear about the latest research opportunities and strategies, and urge Congress to make a difference in the fight against ALS. …

Progress coming in amyotrophic lateral sclerosis, but rigorous studies needed

The community of individuals living with amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease, has endured many false hopes for promising therapies and is still waiting for the first disease-modifying drug. Nevertheless, "we have made huge progress in the last decade in ALS," Merit Cudkowicz, professor of neurology at Harvard Medical School and chief of the neurology service and director of the MDA ALS Clinic at Massachusetts General Hospital, told participants in an integrated neuroscience session on ALS at the American Academy of Neurology (AAN) 67th annual meeting. Read the entire article

NEALS Members Attend the American Academy of Neurology Annual Meeting in Washington, DC

The 67th American Academy of Neurology Annual Meeting took place in Washington, DC on April 22. This year, an overwhelming number of NEALS members were invited to participate; the membership gave multiple plenary talks, served as session chairs, participated in platform presentations, and presented over 25 abstract posters over the week-long program. If you weren't able to join in person for the event this year, all abstracts can be found

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