Trial News & Events

Take a survey to help guide drug development for ALS

Calling all individuals with ALS and caregivers:

We need your help!

Take a survey to help guide drug development for ALS

Completed Survey Due: November 1, 2017

In an effort to include your perspective to help guide the development of new drugs and services for ALS, we are conducting a survey of patients with ALS and of their caregivers. This initiative, titled IMPACT-ALS (Investigating and Measuring Patient And Caregiver Trends about ALS), is a collaboration with 3 industry partners (Biogen, Ionis, and Cytokinetics) and several clinicians.

The survey is intended to identify the burden of ALS and concerns during the course of the disease, preferences for treatment, and any differences in perceptions between patients and caregivers. Results from this survey are planned to be published in peer review journals and other channels. Results will be accessible to all participants.

We kindly ask that you please take the time to fill out this important survey at the link below.

Click here for the survey:

  • Please complete each question to the best of your ability
  • The survey should take approximately 35 minutes to complete
  • All open ended questions are optional
  • Responses are completely anonymous

If you have any difficulty while completing the survey please call +415.262.5206, or email Thank you for your participation in this important initiative!