2018 Annual NEALS Meeting
Connect with over 350 NEALS members, foundation partners, company representatives and ALS researchers at our Annual Meeting at the Opal Sands Resort in beautiful Clearwater Beach, Florida. The 17th Annual NEALS Meeting will be held October 2 - 4, 2018.
The 2018 NEALS Meeting will feature research updates, member presentations, an abstract poster session, a science symposium, and numerous networking opportunities. Click here to view the tentative schedule of events.
2018 Meeting Highlights
Tuesday, October 2nd:
Bulbar ALS Update Session (2:00 pm – 4:00 pm) Led by the NEALS Bulbar Committee. Open to all attendees who wish to learn more about the assessment of speech, AAC and swallowing for our ALS patients. Read more.
Ventilation Symposium (2:00 pm – 4:00 pm) Hosted by the NEALS Ventilation Committee. Open to all attendees wishing to share perspective on reviewing the evidence and experience had with different ventilatory tools for patients with ALS, along with any experience had with regulators regarding options for patients. Read more.
Industry/NEALS Member Roundtable (4:00 pm – 6:00 pm) Open to all registered attendees.
An open discussion with a panel of industry-partners and the NEALS membership on the evolving landscape of ALS trials. Moderated by Drs. Nazem Atassi (Massachusetts General Hospital) and Jinsy Andrews (Columbia University), this year's industry round table discussion is designed to raise important and timely issues around ALS clinical trials in order to generate discussion among clinical trialists, the companies interested in running clinical trials, and the foundations interested in supporting these efforts.
The topics for discussion during the roundtable will include:
- Innovative clinical trial designs in ALS trials
- Potential surrogate markers of disease and functional outcome measures or endpoints
- Expanded access programs (EAP) and early introduction of open label extensions (OLE)
Welcome Reception (6:00 pm – 7:30 pm)
Join us to toast the 17th Annual NEALS Meeting!
Wednesday, October 3rd:
NEALS Member Research and Affiliated Trial Updates (General Session, 9:10 am – 12:00 pm)
New Member Q&A (12:15 pm – 1:15 pm with NEALS Leadership)
Abstract Platform and Poster Presentations (1:30 pm – 5:45 pm)
Inaugural Industry-Partner Poster Blitz (5:50 pm – 6:15 pm)
Reception and BBQ Dinner (6:30 pm – 9:30 pm)
Thursday, October 4th:
Science Symposium (9:15 am – 12:00 pm) featuring an update by the NEALS Science Advisory Board and talks by leaders in the fields of ALS/FTD and Clinical Trial Design, including: “Untying the Gordian Knot of ALS and FTD – Should We?” Bruce Miller, MD (University of California, San Francisco); "What Should We Do About Cognitive and Behavioral Changes in ALS?" Orla Hardiman, BSc, MD, FRCPI, FTCD, MRIA (Trinity College Dublin); and “Innovative Statistical Design and Analysis in ALS.” Christopher Coffey, PhD (University of Iowa)
Opal Sands Resort
THE CONFERENCE HOTEL IS NOW FULLY BOOKED FOR THE DURATION OF THE CONFERENCE. Please follow-up with the Opal Sands Resort directly for any room cancellations by calling (727) 450-0380.
There are two alternative options for accommodations during the meeting:
1. An overflow block can be found at the Sandpearl Resort (15-minute walk from the meeting location)
To book online, visit https://www.sandpearl.com
CLICK "BOOK NOW"
SELECT YOUR DATES
CLICK "SPECIAL CODE"
SELECT "GROUP/BLOCK CODE"
ENTER CODE NEALS0918
You may also call the Sandpearl Resort directly and mention block code NEALS0918 to reserve a room at (727) 441-2425.
2. You are also welcome to book a hotel room at Shephard’s Beach Resort (5-minute walk from the meeting location; no meeting block code)
SHEPHARD’S BEACH RESORT
619 S GULFVIEW BLVD
CLEARWATER BEACH, FL 33767
WE ENCOURAGE THOSE WITHOUT ACCOMMODATIONS TO BOOK A ROOM AS SOON AS POSSIBLE.