Familial ALS/Frontotemporal Dementia

The fALS/FTD committee focuses on clinical care, research, and clinical trials for these genetic and phenotypically defined subsets of ALS. Given the overlap of ALS and FTD in the most common form of fALS, there are many shared areas of interest between fALS and FTD. The fALS/FTD committee promotes treatment advances in ALS by building on existing relationships with all ALS/FTD researchers, toward the common goal of applying evidence based research to advance clinical treatment.

Resources:

• Amyotrophic Lateral Sclerosis Cognitive Behavioral Screen (ALS-CBS) Manual
• Dr. Claire Flaherty’s (Penn State College of Medicine) tutorial video on how to perform the ALS-CBS: https://drive.google.com/file/d/0B1u7MZ2QWZE2cTQyM1ExRndPUXc/view?ts=5b8dc3fc