Organized by the Northeast ALS Consortium (NEALS), the ALS Clinical Research Learning Institute® (CRLI) program offers a comprehensive curriculum covering various aspects of ALS clinical research, including study design, data analysis, ethical considerations, and community engagement opportunities. Individuals who complete the training program are considered ALS Research Ambassadors and are eligible to participate in opportunities that influence and improve the ALS research process.
The ALS CRLI was launched in 2011 by Richard Bedlack, MD, PhD (Duke ALS Clinic) and Merit Cudkowicz, MD, MSc (Sean M. Healey & AMG Center for ALS at Mass General Hospital) to empower people living with ALS and their loved ones with essential knowledge about clinical research. Through education and collaboration, the ALS CRLI plays a crucial role in fostering a community of engaged ALS Research Ambassadors dedicated to including lived experience in ALS research. Click here to read more about the ALS CRLI program.