About
The ALS Clinical Research Learning Institute® (CRLI) is an annual two-day program dedicated to educating attendees on clinical research and therapy development and empowering this group to be advocates for ALS clinical research. Certification as an ALS Research Ambassador® provides attendees with the opportunity to influence and improve the ALS research process.
To learn more about the ALS Clinical Research Learning Institute® and what it means to become an ALS Research Ambassador®, click here watch a recording of Dr. Richard Bedlack’s presentation from the 2020 CRLI or here to watch a webinar featuring ALS Research Ambassadors.
Become An ALS Research Ambassador®
NEALS is seeking nominations and self-nominations for the 2021 Virtual ALS Clinical Research Learning Institute® (CRLI). The 11th Annual NEALS CRLI will take place online October 8 - 9, 2021. People living with ALS, caregivers, and surviving family members who have not attended a previous CRLI are encouraged to apply.
The deadline to submit an application for the 2021 ALS CRLI is August 20th, 2021.
Meet Our ALS Research Ambassadors
There are over 400 trained ALS Research Ambassadors to date! You can follow the NEALS ALS Research Ambassadors on Facebook to see what they're working on.
Outreach Efforts
| Outreach Efforts by NEALS Research Ambassadors | Number of Each |
|---|---|
| ALS speaking engagement (fundraiser, support group, political event, etc.) | 1,069 |
| Organization of or participation in an ALS event | 285 |
| Interview (TV, radio, web or print) | 117 |
| Speaking or writing to a congressman | 2,537 |
| ALS video (YouTube, social media, webinar, etc.) | 68 |
| Creation of or contribution to a website, blog or social media page | 444 |
| Published article/column (web or print) | 80 |
| Serving on an ALS committee | 337 |
| Mentoring (PALS or CALS) | 237 |
| Other | 170 |
This table shows the types of outreach efforts being undertaken by the NEALS Research Ambassadors. Through these efforts, our ambassadors are educating patients, clinicians, press and policymakers about ALS research and moving the field of ALS advocacy forward. We are very proud of them!
