About

The ALS Clinical Research Learning Institute (CRLI) is an annual two-day program dedicated to educating attendees on clinical research and therapy development and empowering this group to be advocates for ALS clinical research. Becoming an ALS Research Ambassador provides attendees with an opportunity to become even more active in the effort to find a cure for ALS.

Become A Research Ambassador

Applications are now being accepted for the 2019 CRLI! The 9th Annual CRLI will take place October 4 - 5, 2019 at the Opal Sands Resort in sunny Clearwater Beach, Florida.

Patients, caregivers, and surviving family members are encouraged to apply. All patients are invited to bring one caregiver. For those applicants that are selected, travel and accommodations for Friday night’s stay at the resort will be covered.

Applications will be accepted through July 1, 2019 and can be submitted to Carly Allen at cdoyle@neals.org

DOWNLOAD APPLICATION HERE

Meet Our Research Ambassadors

There are over 300 trained ALS Research Ambassadors to date! You can follow the NEALS Research Ambassadors on Facebook to see what they're working on.

Outreach Efforts

Outreach Efforts by NEALS Research Ambassadors Number of Each
ALS speaking engagement (fundraiser, support group, political event, etc.) 786
Organization of or participation in an ALS event 142
Interview (TV, radio, web or print) 75
Speaking or writing to a congressman 204
ALS video (YouTube, social media, webinar, etc.) 16
Creation of or contribution to a website, blog or social media page 242
Published article/column (web or print) 54
Serving on an ALS committee 39
Mentoring (PALS or CALS) 91
Other 11

This table shows the types of outreach efforts being undertaken by the NEALS Research Ambassadors. Through these efforts, our ambassadors are educating patients, clinicians, press and policymakers about ALS research and moving the field of ALS advocacy forward. We are very proud of them!