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About
The ALS Clinical Research Learning Institute (CRLI) is an annual two-day program dedicated to educating attendees on clinical research and therapy development and empowering this group to be advocates for ALS clinical research. Becoming an ALS Research Ambassador provides attendees with an opportunity to become even more active in the effort to find a cure for ALS.
The 9th Annual CRLI was sponsored by I AM ALS, ALS Hope Foundation, Muscular Dystrophy Association, Emory ALS Center, and the Washington University in St. Louis ALS Center. The meeting was held October 4 - 5, 2019 at the Opal Sands Resort in sunny Clearwater Beach, Florida. 27 participants completed the CRLI training program to become ALS Research Ambassadors.
Become A Research Ambassador
The 10th Annual CRLI application period will open in spring 2020. Please check back for details.
Meet Our Research Ambassadors
There are over 300 trained ALS Research Ambassadors to date! You can follow the NEALS Research Ambassadors on Facebook to see what they're working on.
Outreach Efforts
| Outreach Efforts by NEALS Research Ambassadors | Number of Each |
|---|---|
| ALS speaking engagement (fundraiser, support group, political event, etc.) | 889 |
| Organization of or participation in an ALS event | 170 |
| Interview (TV, radio, web or print) | 92 |
| Speaking or writing to a congressman | 324 |
| ALS video (YouTube, social media, webinar, etc.) | 27 |
| Creation of or contribution to a website, blog or social media page | 344 |
| Published article/column (web or print) | 70 |
| Serving on an ALS committee | 42 |
| Mentoring (PALS or CALS) | 123 |
| Other | 11 |
This table shows the types of outreach efforts being undertaken by the NEALS Research Ambassadors. Through these efforts, our ambassadors are educating patients, clinicians, press and policymakers about ALS research and moving the field of ALS advocacy forward. We are very proud of them!
