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About
The ALS Clinical Research Learning Institute (CRLI), sponsored by The ALS Association, is an annual two-day program dedicated to educating attendees on clinical research and therapy development and empowering this group to be advocates for ALS clinical research. Becoming an ALS Research Ambassador provides attendees with an opportunity to become even more active in the effort to find a cure for ALS.
Become A Research Ambassador
The 8th Annual CRLI took place October 4 - 5, 2018 in Clearwater Beach, FL and the application period is now closed. Please check back in the spring for updates on the 2019 program.
Patients, caregivers, and surviving family members are encouraged to apply. All patients are invited to bring one caregiver. For those applicants that are selected, travel and accommodations for Thursday night’s stay at the resort will be covered.
Meet Our Research Ambassadors
There are over 300 trained ALS Research Ambassadors to date! You can follow the NEALS Research Ambassadors on Facebook to see what they're working on.
Outreach Efforts
| Outreach Efforts by NEALS Research Ambassadors | Number of Each |
|---|---|
| ALS speaking engagement (fundraiser, support group, political event, etc.) | 776 |
| Organization of or participation in an ALS event | 114 |
| Interview (TV, radio, web or print) | 75 |
| Speaking or writing to a congressman | 197 |
| ALS video (YouTube, social media, webinar, etc.) | 16 |
| Creation of or contribution to a website, blog or social media page | 222 |
| Published article/column (web or print) | 52 |
| Serving on an ALS committee | 30 |
| Mentoring (PALS or CALS) | 83 |
| Other | 11 |
This table shows the types of outreach efforts being undertaken by the NEALS Research Ambassadors. Through these efforts, our ambassadors are educating patients, clinicians, press and policymakers about ALS research and moving the field of ALS advocacy forward. We are very proud of them!
