About
The ALS Clinical Research Learning Institute® (CRLI) is an annual two-day program dedicated to educating attendees on clinical research and therapy development and empowering this group to be advocates for ALS clinical research. Certification as an ALS Research Ambassador® provides attendees with the opportunity to influence and improve the ALS research process.
To learn more about the ALS Clinical Research Learning Institute® and what it means to become an ALS Research Ambassador®, click here watch a recording of Dr. Richard Bedlack’s presentation from the 2020 CRLI or here to watch a webinar featuring ALS Research Ambassadors.
Become An ALS Research Ambassador®
Details regarding upcoming ALS CRLIs will be posted here. Please check back periodically.
Meet Our ALS Research Ambassadors
There are over 400 trained ALS Research Ambassadors to date! To learn more about the projects the ALS Research Ambassadors are working on, click here to watch a roundtable discussion presented at the 2021 virtual Annual NEALS Meeting. You can also follow the NEALS ALS Research Ambassadors on Facebook.
Outreach Efforts
| Outreach Efforts by NEALS Research Ambassadors | Number of Each |
|---|---|
| ALS speaking engagement (fundraiser, support group, political event, etc.) | 1,077 |
| Organization of or participation in an ALS event | 330 |
| Interview (TV, radio, web or print) | 120 |
| Speaking or writing to a congressman | 2,628 |
| ALS video (YouTube, social media, webinar, etc.) | 75 |
| Creation of or contribution to a website, blog or social media page | 451 |
| Published article/column (web or print) | 82 |
| Serving on an ALS committee | 350 |
| Mentoring (PALS or CALS) | 252 |
| Other | 9,201 |
This table shows the types of outreach efforts being undertaken by the NEALS Research Ambassadors. Through these efforts, our ambassadors are educating people living with ALS, clinicians, press and policymakers about ALS research and moving the field of ALS advocacy forward.
