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About
The ALS Clinical Research Learning Institute (CRLI) is an annual two-day program dedicated to educating attendees on clinical research and therapy development and empowering this group to be advocates for ALS clinical research. Becoming an ALS Research Ambassador provides attendees with an opportunity to become even more active in the effort to find a cure for ALS.
Become A Research Ambassador
Applications are now being accepted for the 2019 CRLI! The 9th Annual CRLI will take place October 4 - 5, 2019 at the Opal Sands Resort in sunny Clearwater Beach, Florida.
Patients, caregivers, and surviving family members are encouraged to apply. All patients are invited to bring one caregiver. For those applicants that are selected, travel and accommodations for Friday night’s stay at the resort will be covered.
Applications will be accepted through July 1, 2019 and can be submitted to Carly Allen at cdoyle@neals.org.
Meet Our Research Ambassadors
There are over 300 trained ALS Research Ambassadors to date! You can follow the NEALS Research Ambassadors on Facebook to see what they're working on.
Outreach Efforts
| Outreach Efforts by NEALS Research Ambassadors | Number of Each |
|---|---|
| ALS speaking engagement (fundraiser, support group, political event, etc.) | 786 |
| Organization of or participation in an ALS event | 142 |
| Interview (TV, radio, web or print) | 75 |
| Speaking or writing to a congressman | 204 |
| ALS video (YouTube, social media, webinar, etc.) | 16 |
| Creation of or contribution to a website, blog or social media page | 242 |
| Published article/column (web or print) | 54 |
| Serving on an ALS committee | 39 |
| Mentoring (PALS or CALS) | 91 |
| Other | 11 |
This table shows the types of outreach efforts being undertaken by the NEALS Research Ambassadors. Through these efforts, our ambassadors are educating patients, clinicians, press and policymakers about ALS research and moving the field of ALS advocacy forward. We are very proud of them!
