Educational Webinars

In partnership with The ALS Association, NEALS offers live webinars for people with ALS, caregivers and the broader ALS community. Topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

Upcoming Webinars

Research and Support for Young Caregivers and Families Affected by ALS

Presenter: Melinda Kavanaugh, PhD, MSW, LCSW, University of Wisconsin - Milwaukee
Despite the growing body of research on caregivers in ALS, the most vulnerable and isolated population of caregivers, children and youth caregivers, or “young caregivers,” remain hidden. Young caregivers, between the ages of 5-19, participate in all aspects of daily care, from feeding and bathing, to toileting and transferring, all in relative isolation. A growing body of international young caregiver research highlights the emotional and social impacts, underscoring gaps in evidence-based programming across countries. A survey of U.S. families in ALS found almost one third of families have a child or youth under age 18 providing care. Recent data suggests sleep disruption and minimal caregiving training is common in young caregivers, increasing anxiety and setting up the potential for long-term health effects in young caregivers. Dr. Kavanaugh will provide a discussion of current research on children and youth caregivers in ALS/MND, including perspectives of the person with ALS, how research has been used to inform evidence-based interventions and supports, and a roadmap for future inclusion of children and youth in caregiving research, programming, and supports.

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Simplifying the Search: How to Find the Right ALS Clinical Trial for You

Presenter: Timothy Miller, MD, PhD, Washington University in St. Louis
This webinar provides introductory-level instruction on how to search for ALS clinical trials. You will learn what resources to use to find open ALS clinical trials and where to look for specific information such as eligibility criteria, trial site locations, and if traveling is required.

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ALS Clinical Research Learning Institutes: Empowering People with ALS to be Research Ambassadors

Presenter: Richard Bedlack, MD, PhD, Duke ALS Clinic
In this webinar, we will review the background that led to the creation of ALS Clinical Research Learning Institutes, show what these look like, and detail how patients and families can apply to participate. Several graduates of the program (called Research Ambassadors) will show firsthand how they are using the knowledge they gained through the curriculum to improve ALS research for everyone. 

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Archived Webinars

Palliative Care in ALS Clinic Screenshot
Palliative Care in ALS Clinic
ALS Clinical Trial Pipeline Series - Winter 2019 Screenshot
ALS Clinical Trial Pipeline Series - Winter 2019
The Neuropathology of ALS: What can we learn? Screenshot
The Neuropathology of ALS: What can we learn?
Gene-targeted Therapeutics for ALS Screenshot
Gene-targeted Therapeutics for ALS
Postcards from the Edge: Updates on Six Unusual ALS Projects. Screenshot
Postcards from the Edge: Updates on Six Unusual ALS Projects.
Accelerating Therapy Development and Expanding Access Screenshot
Accelerating Therapy Development and Expanding Access
The Trach Decision from an ALS Patient’s Perspective Screenshot
The Trach Decision from an ALS Patient’s Perspective
Update on Stem Cell Trials in ALS: NurOwn and Other Studies Screenshot
Update on Stem Cell Trials in ALS: NurOwn and Other Studies
Right to Try? Historical, Legal and Ethical Considerations Screenshot
Right to Try? Historical, Legal and Ethical Considerations
The Merging of Science and Technology in ALS Research Screenshot
The Merging of Science and Technology in ALS Research
Cured by Curcumin? Untangling another ALS X-file Screenshot
Cured by Curcumin? Untangling another ALS X-file
Treating Respiratory Dysfunction in ALS Screenshot
Treating Respiratory Dysfunction in ALS
Nutrition in ALS: How to EAT MORE! Screenshot
Nutrition in ALS: How to EAT MORE!