Educational Webinars

In partnership with The ALS Association, NEALS offers live webinars for people with ALS, caregivers and the broader ALS community. Experts explain the scientific rationale and design of current ALS research. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

Upcoming Webinars

Results from the Immunosuppression in ALS Trial

Dr. Christina Fournier, Emory University, will review the results from the recently completed Immunosuppression in ALS clinical trial and will discuss the possible roles that the immune system plays in ALS disease progression.

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Exercise and ALS: A Discussion of Research and Practical Recommendations

Speaker: Amy Swartz Ellrodt, PT, DPT, Massachusetts General Hospital
Many people with ALS have questions regarding exercise and staying active. Join us for a discussion of the available research regarding Exercise for people with ALS, as well as general recommendations from ALS doctors and physical therapists regarding the "do's" and "don'ts" of exercise for people with ALS.

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A Phase II Study in ALS of the Effects of Mexiletine on Hyperexcitability of Motor Neurons

Speaker: Michael Weiss, MD, University of Washington Medical Center
Overexcitation (hyperexcitability) of motor neurons appears to be an early process in ALS and could lead to cell death. The objective of this phase II study is to determine the effects of mexiletine, a cardiac anti-arrhythmic medication, on cortical hyperexcitability in ALS subjects using transcranial magnetic stimulation, a device which employs magnetic fields to target the motor cortex of the brain to determine their level of excitation, and on peripheral nerve excitability using threshold tracking, a technique that stimulates the nerves with low levels of electricity. Reduction of hyperexcitability may suggest that a larger and longer phase III study is warranted to determine whether mexiletine slows progression of the disease. Join us to hear more about this study!

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ALS Research Counts on You - Learn How the National ALS Registry Advances Research

Speakers: Wendy E. Kaye, PhD, McKing Consulting Corporation and Paul Mehta, MD, National ALS Registry  
The National ALS Registry does more than just count ALS cases. Learn how the Registry promotes and advances ALS research by connecting patients with researchers for clinical trials and studies, funding etiological research, and facilitating the availability of biological specimens collected by the newly launched National ALS Biorepository where patients can donate their specimens to advance ALS research.

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Power Wheelchair: Documentation Requirements

Speaker: Sherry Kolodziejczak, MS, OTR/L, Crestwood Medical Center
This presentation will review the documentation requirements for power wheelchair evaluation. The Medicare Power Wheelchair form will be reviewed in a line-by-line basis teaching the required documentation requirements. Required documentation areas also discussed include the Physician Face-to-Face Exam, the 7 element order, the therapist Specialty Examination, and the detailed product description/letter of medical necessity. When proper submission of the power wheelchair evaluation documentation follows the 9 step Algorithm, approval and delivery of power wheelchair to the client is assured.

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Archived Webinars

ALS Clinical Trial Pipeline Series - Spring 2017 Screenshot
ALS Clinical Trial Pipeline Series - Spring 2017
How Professionals Can Help the Kids in ALS Families Screenshot
How Professionals Can Help the Kids in ALS Families
Actemra Study - Anti-inflammatory treatment for ALS Screenshot
Actemra Study - Anti-inflammatory treatment for ALS
A User’s Guide to Genetic Testing in ALS Screenshot
A User’s Guide to Genetic Testing in ALS
Opportunities and Tips for Raising ALS Awareness & Advocacy Screenshot
Opportunities and Tips for Raising ALS Awareness & Advocacy
ALS Clinical Trial Pipeline Series - Fall 2016 Screenshot
ALS Clinical Trial Pipeline Series - Fall 2016
C9: From ID (Identification) to Therapy Screenshot
C9: From ID (Identification) to Therapy
Ibudilast trials in ALS Screenshot
Ibudilast trials in ALS
ALS Clinical Trial Pipeline Series - Spring 2016 Screenshot
ALS Clinical Trial Pipeline Series - Spring 2016
Answer ALS Screenshot
Answer ALS
ALSUntangled - Re-Opening the X-Files Screenshot
ALSUntangled - Re-Opening the X-Files
Updates in Nutritional Interventions for ALS Screenshot
Updates in Nutritional Interventions for ALS
Research Updates - NEALS & MNDA Screenshot
Research Updates - NEALS & MNDA