Educational Webinars

In partnership with The ALS Association, NEALS offers live webinars for people with ALS, caregivers and the broader ALS community. Topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

Upcoming Webinars

I Just Took a DNA test - Turns Out I Don’t Have All the Answers

Are you one of the many pALS who had genetic testing this year? Grab your genetic test report and sit down with Jennifer Roggenbuck, MS, CGC, Genetic Counselor at The Ohio State University Medical Center, to discuss what it all means. Common test outcomes, implications for family members, and next steps will be discussed. 

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Palliative Care in ALS Clinic

Speaker: Raghav Govindarajan, MD, University of Missouri
Given the complexity of issues accompanying an ALS diagnosis, professional organizations increasingly recommend that ALS patients and their families receive specialist palliative care services concurrent with clinic-based neurological multidisciplinary care. However, no broadly accepted guidelines define the optimal integration of palliative care into existing clinical frameworks. In fact, most patients with ALS may never interact with a specialist palliative care team at any point over the course of their disease. This webinar introduces palliative care into the ALS clinic and provides an understanding of its role and a framework into its integration in the care of ALS patients. 

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REFINE-ALS: A Much Needed Biomarker Study of Edaravone (Radicava) in ALS

Presenter: James D. Berry, MD, MPH, Massachusetts General Hospital
We will review edaravone evidence, talk about the use of biomarkers to understand the effect of medical therapies, present the design of the REFINE-ALS study, and discuss how people can get involved in the study. 

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Archived Webinars

The Neuropathology of ALS: What can we learn? Screenshot
The Neuropathology of ALS: What can we learn?
Gene-targeted Therapeutics for ALS Screenshot
Gene-targeted Therapeutics for ALS
Postcards from the Edge: Updates on Six Unusual ALS Projects. Screenshot
Postcards from the Edge: Updates on Six Unusual ALS Projects.
Accelerating Therapy Development and Expanding Access Screenshot
Accelerating Therapy Development and Expanding Access
The Trach Decision from an ALS Patient’s Perspective Screenshot
The Trach Decision from an ALS Patient’s Perspective
Update on Stem Cell Trials in ALS: NurOwn and Other Studies Screenshot
Update on Stem Cell Trials in ALS: NurOwn and Other Studies
Right to Try? Historical, Legal and Ethical Considerations Screenshot
Right to Try? Historical, Legal and Ethical Considerations
The Merging of Science and Technology in ALS Research Screenshot
The Merging of Science and Technology in ALS Research
Cured by Curcumin? Untangling another ALS X-file Screenshot
Cured by Curcumin? Untangling another ALS X-file
Treating Respiratory Dysfunction in ALS Screenshot
Treating Respiratory Dysfunction in ALS
Nutrition in ALS: How to EAT MORE! Screenshot
Nutrition in ALS: How to EAT MORE!
ALS Clinical Trial Pipeline Series - Spring 2018 Screenshot
ALS Clinical Trial Pipeline Series - Spring 2018