Educational Webinars

In partnership with The ALS Association, NEALS offers live webinars for people with ALS, caregivers, and the broader ALS community. Topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

Upcoming Webinars

Maximizing Repositories to Accelerate ALS Research: Biofluids, Tissues, Cells and Data

Presenters: Dr. James Berry (Sean M. Healey & AMG Center for ALS at Mass General Hospital), Dr. Robert Bowser (Barrow Neurological Institute), Dr. Lyle Ostrow (Johns Hopkins University School of Medicine), and Dr. Jeffrey Rothstein (Johns Hopkins University School of Medicine)
ALS Biorepositories have expanded the opportunities for scientific investigation to ALS researchers worldwide. Many types of Biorepositories and related efforts exist to support research and to aid in therapeutic development. 
The NEALS Biorepository is housed at the Healey Center for ALS at Mass General Hospital and Barrow Neurological Institute and overseen by the NEALS Biorepository Committee. Samples and data are shared broadly to facilitate ALS research. The repository is partially funded by The ALS Association.
Answer ALS is an open-sourced observational study and data analytics pipeline with biofluids, iPSC and clinical data form over 1000 participants. A web-based portal streamlines data access and sample requests to allow broad use and collaboration from the scientific community.
The Target ALS Postmortem Core encompasses six centers and sends precious postmortem tissue to scores of ALS investigators each year. Target ALS has also launched a longitudinal biofluid collection study that will be discussed.
We invite you to join us for this webinar and learn more about how these and other existing ALS biorepositories can aid in your research efforts. The one-hour webinar will provide an overview of the Biorepositories and the process for requesting and obtaining samples.

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Archived Webinars

Expanded Access to Investigational Drugs Screenshot
Expanded Access to Investigational Drugs
Results of the REFALS Study Screenshot
Results of the REFALS Study
Is the Key to Stopping ALS Being Flushed Down Our Toilets? Screenshot
Is the Key to Stopping ALS Being Flushed Down Our Toilets?
Long-Term Survival of Participants in the CENTAUR Trial Screenshot
Long-Term Survival of Participants in the CENTAUR Trial
I AM ALS presents ALS Signal and PaCTD: Patient Centric Tools Screenshot
I AM ALS presents ALS Signal and PaCTD: Patient Centric Tools
AMX0035 Results: Implications for People with ALS Screenshot
AMX0035 Results: Implications for People with ALS
Update #2: Impact of COVID-19 on ALS clinical research Screenshot
Update #2: Impact of COVID-19 on ALS clinical research
Impact of COVID-19 on ALS clinical research Screenshot
Impact of COVID-19 on ALS clinical research