Educational Webinars

In partnership with The ALS Association, NEALS offers live webinars for people with ALS, caregivers and the broader ALS community. Topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

Upcoming Webinars

The Trach Decision from an ALS Patient’s Perspective

Speaker: Jeri L. Prosser, RRT, BTPS, The ALS Association - DC/MD/VA Chapter
The decision to pursue a trach is an individual choice that does not have a right or wrong answer. This presentation will be based on actual questions asked by those with ALS facing this decision. It will give insight to the steps and processes that come with the pursuit of a trach, along with an understanding of what those opting for this procedure are interested in learning.

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The VA and ALS: An overview for veterans with ALS and clinicians.

Speakers: Christina Fournier, MD, MSc, Emory University, Atlanta VA Medical Center and Colin Quinn, MD, Penn Comprehensive ALS Center, CMJC VAMC ALS Multidisciplinary Clinic 
Topics to be discussed include an overview of the link between military service and ALS, a guide to ALS care and benefits within the VA system, and tips for navigating the VA system to optimize care for veterans with ALS. This webinar will provide useful information to veterans with ALS and their caregivers, clinicians within the VA system, and clinicians outside of the VA system who take care of veterans with ALS.

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The REFALS Trial: A Phase 3 Trial of Oral Levosimendan on Respiratory Function in PALS

Dr. Merit Cudkowicz (Massachusetts General Hospital) and Dr. Ammar Al-Chalabi (King's College London) will discuss REFALS, a clinical trial for people with ALS. REFALS is a Phase 3 trial testing the effects of Oral Levosimendan (ODM-109) on breathing function. REFALS is ongoing and will enroll 450 participants across 104 sites in the U.S., Canada, EU and Australia.  

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Archived Webinars

Update on Stem Cell Trials in ALS: NurOwn and Other Studies Screenshot
Update on Stem Cell Trials in ALS: NurOwn and Other Studies
Right to Try? Historical, Legal and Ethical Considerations Screenshot
Right to Try? Historical, Legal and Ethical Considerations
The Merging of Science and Technology in ALS Research Screenshot
The Merging of Science and Technology in ALS Research
Cured by Curcumin? Untangling another ALS X-file Screenshot
Cured by Curcumin? Untangling another ALS X-file
Treating Respiratory Dysfunction in ALS Screenshot
Treating Respiratory Dysfunction in ALS
Nutrition in ALS: How to EAT MORE! Screenshot
Nutrition in ALS: How to EAT MORE!
ALS Clinical Trial Pipeline Series - Spring 2018 Screenshot
ALS Clinical Trial Pipeline Series - Spring 2018
Power Wheelchair: Documentation Requirements Screenshot
Power Wheelchair: Documentation Requirements
ALSA-BIO3: Building future success through biomarkers Screenshot
ALSA-BIO3: Building future success through biomarkers
Actemra Clinical Trial Update Screenshot
Actemra Clinical Trial Update
Lazarus by Lunasin? Untangling an ALS X-File Screenshot
Lazarus by Lunasin? Untangling an ALS X-File
Environmental Risk Factors for Amyotrophic Lateral Sclerosis Screenshot
Environmental Risk Factors for Amyotrophic Lateral Sclerosis
ALS AT HOME: Bringing research home to you Screenshot
ALS AT HOME: Bringing research home to you
Power Wheelchairs - The Basics and Beyond Screenshot
Power Wheelchairs - The Basics and Beyond