Educational Webinars

In partnership with The ALS Association, NEALS offers live webinars for people with ALS, caregivers, and the broader ALS community. Topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

Upcoming Webinars

Open Label Extension Study Results of AMX0035: Implications for People with ALS

In this session, Dr. Neil Thakur and Dr. Kuldip Dave from The ALS Association will talk about the implications of additional results from the Open Label Study of the CENTAUR trial for the ALS community. They will discuss The ALS Association's plans for helping the ALS community influence when AMX0035 might be approved for clinical use. Dr. Jinsy Andrews, NEALS co-Chair and Association Trustee, will moderate audience questions.  

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ALS Nutrition App - Cooking Demonstrations and Ask a Dietitian Session!

Presenters: Anne-Marie Wills, MD, MPH, Mansi Sharma, BS, and Jamie Garry, MS, RD, LDN from the Massachusetts General Hospital  
The ALS Nutrition App team will be hosting a live webinar event on Tuesday, October 27th at 12 pm EDT. Dr. Anne-Marie Wills will present an introduction to the ALS Nutrition App, Mansi Sharma will share 2 cooking demonstrations featuring recipes taken directly from the app, and Jamie Garry, a Registered Dietitian, will host a live Q&A session for patients with ALS! Come join us!  

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Is the Key to Stopping ALS Being Flushed Down Our Toilets?

Presenter: Richard Bedlack, MD, PhD, Duke ALS Clinic
The gut microbiome is the family of organisms that live inside our GI tracts. It is very clear that the gut microbiome plays a role in gastrointestinal diseases. Recently, evidence is emerging that the gut microbiome may play a role in driving ALS progression. Here we will review the microbiome, its role in gastrointestinal diseases, and the recent work linking it to ALS. We will highlight the next steps being taken to better understand whether and how manipulation of the microbiome might be undertaken to slow, stop or reverse ALS progression. 

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Results of the REFALS Study

Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Hospital) will review the results of the REFALS trial evaluating the effect of oral levosimendan (ODM-109) on respiratory function in people with ALS.

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Archived Webinars

I AM ALS presents ALS Signal and PaCTD: Patient Centric Tools Screenshot
I AM ALS presents ALS Signal and PaCTD: Patient Centric Tools
VALOR: A Clinical Study for People Living with SOD1-ALS Screenshot
VALOR: A Clinical Study for People Living with SOD1-ALS
AMX0035 Results: Implications for People with ALS Screenshot
AMX0035 Results: Implications for People with ALS
Update #2: Impact of COVID-19 on ALS clinical research Screenshot
Update #2: Impact of COVID-19 on ALS clinical research
Impact of COVID-19 on ALS clinical research Screenshot
Impact of COVID-19 on ALS clinical research
Palliative Care in ALS Clinic Screenshot
Palliative Care in ALS Clinic
ALS Clinical Trial Pipeline Series - Winter 2019 Screenshot
ALS Clinical Trial Pipeline Series - Winter 2019
The Neuropathology of ALS: What can we learn? Screenshot
The Neuropathology of ALS: What can we learn?
Gene-targeted Therapeutics for ALS Screenshot
Gene-targeted Therapeutics for ALS
Postcards from the Edge: Updates on Six Unusual ALS Projects. Screenshot
Postcards from the Edge: Updates on Six Unusual ALS Projects.
Accelerating Therapy Development and Expanding Access Screenshot
Accelerating Therapy Development and Expanding Access