Educational Webinars

In partnership with The ALS Association, NEALS offers live webinars for people with ALS, caregivers and the broader ALS community. Topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

Upcoming Webinars

The Centaur trial: a phase 2 trial of AMX0035 for the treatment of ALS

Dr. Sabrina Paganoni, Massachusetts General Hospital, will discuss CENTAUR, a trial for people with ALS. CENTAUR ("Combination of Phenylbutyrate and Tauroursodeoxycholic Acid") is a Phase 2 trial testing the efficacy and safety of AMX0035 for the treatment of ALS as well as its impact on several disease biomarkers. CENTAUR is expected to enroll 132 participants nationwide.

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Proactive and Collaborative Consideration of Augmentative Communication Tools and Strategies

Presenter: John M. Costello, MA, CCC-SLP, ALS Augmentative Communication Program, Boston Children's Hospital
This webinar will focus on a variety of communication supports that a person with ALS may consider including early simple speech and writing strategies, creating and learning simple quick access tools, message and voice banking and examples of sophisticated technologies that are currently available to support communication, email, texting, telephone and environmental controls.

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Nutrition in ALS: How to EAT MORE!

Anne-Marie Wills, MD, MPH, Massachusetts General Hospital, will present the results of the EAT MORE (E-health Application To Monitor Outcomes Remotely) study and Jane Hubbard, MS, RD, LDN, Massachusetts General Hospital, will review nutrition recommendations and tips for patients with ALS.

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Archived Webinars

ALS Clinical Trial Pipeline Series - Spring 2018 Screenshot
ALS Clinical Trial Pipeline Series - Spring 2018
Power Wheelchair: Documentation Requirements Screenshot
Power Wheelchair: Documentation Requirements
ALSA-BIO3: Building future success through biomarkers Screenshot
ALSA-BIO3: Building future success through biomarkers
Actemra Clinical Trial Update Screenshot
Actemra Clinical Trial Update
Lazarus by Lunasin? Untangling an ALS X-File Screenshot
Lazarus by Lunasin? Untangling an ALS X-File
Environmental Risk Factors for Amyotrophic Lateral Sclerosis Screenshot
Environmental Risk Factors for Amyotrophic Lateral Sclerosis
ALS AT HOME: Bringing research home to you Screenshot
ALS AT HOME: Bringing research home to you
Power Wheelchairs - The Basics and Beyond Screenshot
Power Wheelchairs - The Basics and Beyond
Results from the Immunosuppression in ALS Trial Screenshot
Results from the Immunosuppression in ALS Trial
ALS Clinical Trial Pipeline Series - Spring 2017 Screenshot
ALS Clinical Trial Pipeline Series - Spring 2017
How Professionals Can Help the Kids in ALS Families Screenshot
How Professionals Can Help the Kids in ALS Families