Please join us on March 23rd for a webinar discussion on cannabinoid use in ALS led by Drs. Mark Ware and Angela Genge from the Montreal Neurological Institute and Hospital. Dr. Ware will discuss the mechanism of action of cannabinoids, while Dr. Genge will discuss their use in symptom management, and possible effect on disease course.
In partnership with The ALS Association, NEALS offers live webinars for people with ALS and other motor neuron diseases. Experts explain the scientific rationale and design of current ALS research. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.
Dr. Brian Wainger, from Massachusetts General Hospital, will discuss the rationale and design of the study, describe the recent Protocol Amendment which impacts the patient population to be recruited and what is entailed by participating in the study. Dr. Wainger will also provide a brief update of the ongoing study.
Speaker: Laurie B. Fieldman, LCSW, Les Turner ALS Foundation
All ALS families affect the professionals who work with them, but the most difficult to forget are often the ALS families with children. We want to help them, but the intense needs of the patient sometimes cause the grown-ups to miss the fact that their children have intense needs as well. Many professionals don't get the opportunity to work with these kids directly, but we can still help them by providing information to their parents. While there is no easy way to tell a child of any age that her/his parent or loved one has ALS, there are some guidelines to share for that painful moment, as well as guidelines for living life as fully as possible. The goal of this webinar is to share this information so that we can help arm the families with the information they need to minimize the impact on the kids in ALS families. Of course that is much easier said than done; however, it is possible and we can help.
Dr. Merit Cudkowicz, Chief of Neurology at Massachusetts General Hospital, will review the ALS clinical trial pipeline and answer questions about the current state of clinical research. This webinar will focus on current and upcoming ALS clinical trials.