Educational Webinars

In partnership with The ALS Association, NEALS offers live webinars for people with ALS, caregivers and the broader ALS community. Topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

Upcoming Webinars

ROADS to a better ALS outcome measure: the new Rasch-Built Overall ALS Disability Scale (ROADS).

Presenter: Christina Fournier, MD, MSc, Emory University
This webinar will present the rationale for creating a new ALS disability scale, give an overview on the creation and validation of the ROADS, and will discuss advantages of using this new tool for ALS research and clinical practice. Patients with ALS and their caregivers will learn more about how ALS disease progression is measured and why it matters, and clinicians and researchers will be provided with specific details about the ROADS to allow its use in clinical trials and at the bedside.   

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Archived Webinars

Palliative Care in ALS Clinic Screenshot
Palliative Care in ALS Clinic
ALS Clinical Trial Pipeline Series - Winter 2019 Screenshot
ALS Clinical Trial Pipeline Series - Winter 2019
The Neuropathology of ALS: What can we learn? Screenshot
The Neuropathology of ALS: What can we learn?
Gene-targeted Therapeutics for ALS Screenshot
Gene-targeted Therapeutics for ALS
Postcards from the Edge: Updates on Six Unusual ALS Projects. Screenshot
Postcards from the Edge: Updates on Six Unusual ALS Projects.
Accelerating Therapy Development and Expanding Access Screenshot
Accelerating Therapy Development and Expanding Access
The Trach Decision from an ALS Patient’s Perspective Screenshot
The Trach Decision from an ALS Patient’s Perspective
Update on Stem Cell Trials in ALS: NurOwn and Other Studies Screenshot
Update on Stem Cell Trials in ALS: NurOwn and Other Studies
Right to Try? Historical, Legal and Ethical Considerations Screenshot
Right to Try? Historical, Legal and Ethical Considerations
The Merging of Science and Technology in ALS Research Screenshot
The Merging of Science and Technology in ALS Research
Cured by Curcumin? Untangling another ALS X-file Screenshot
Cured by Curcumin? Untangling another ALS X-file
Treating Respiratory Dysfunction in ALS Screenshot
Treating Respiratory Dysfunction in ALS
Nutrition in ALS: How to EAT MORE! Screenshot
Nutrition in ALS: How to EAT MORE!