ALS AT HOME: Bringing research home to you
Speakers: Jeremy Shefner, MD, PhD, Barrow Neurological Institute and Seward Rutkove, MD, Harvard Medical School
ALS AT HOME is a new kind of research study that follows ALS disease progression and collects data on a number of different outcome measures. This study is unique in the fact that it allows patients with ALS to participant in research from home-equipment is shipped directly to participants' homes, and they are able to take outcome measures on their own and send data in over the internet. ALS AT HOME will enroll 250 participants nationwide, with all study procedures being performed remotely.