The ALS Association

Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.
www.alsa.org

The ALS Association also has resources on Familial Amyotrophic Lateral Sclerosis and Genetic Testing: www.alsa.org/als-care/resources/publications-videos/factsheets/genetic-testing-for-als.html

Muscular Dystrophy Association (MDA)

The MDA’s website contains sections on advocacy, clinical trials, support groups, research news, and more.
www.mdausa.org

ALS Therapy Alliance

Website focusing on the ALS Therapy Alliance's expertise and funding to advance their studies of amyotrophic lateral sclerosis.
www.alstherapyalliance.org

ALS Hope Foundation

The mission of the ALS Hope Foundation is to accelerate the search for a cure for ALS. The Foundation supports care and services at the MDA/ALS Center of Hope.
www.alshopefoundation.org

ALS Untangled

Scientific effort investigating alternative and off-label ALS treatments, while bringing together patients, clinicians, and scientists via Twitter, a social networking tool.
http://www.alsuntangled.com/index.html

ALS Forums and Chat

An open support community for people affected by ALS/MND.
www.alsforums.com

ALS Information at the National Institute of Health (NIH)

Comprehensive overview of ALS provided by MedlinePlus, a service of the U.S. National Library of Medicine.  Materials are also available in Spanish.
www.nlm.nih.gov/medlineplus/amyotrophiclateralsclerosis.html

Project A.L.S.

Homepage for Project A.L.S., an organization committed to actively recruiting researchers from many disciplines to work together in four main areas: Basic Research, Genetics, Stem Cells, and Drug Screening.
www.projectals.org

CReATe

The goal of the Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe) Consortium is to advance therapeutic development for sporadic and familial forms of amyotrophic lateral sclerosis (ALS), frontotemporal dementia (FTD), primary lateral sclerosis (PLS), multisystem proteinopathy (MSP), hereditary spastic paraplegia (HSP), and progressive muscular atrophy (PMA). The CReATe consortium aims to support this goal through study of the relationship between clinical phenotype and underlying genotype, and also through the discovery and development of biomarkers.
www.rarediseasesnetwork.org

PatientsLikeMe

PatientsLikeMe® creates new knowledge by charting the real-world course of disease through the shared experiences of patients. While patients interact to help improve their outcomes, the data they provide helps researchers learn how these diseases act in the real-world and accelerate the discovery of new, more effective treatments.
www.patientslikeme.com
[Follow company news on Twitter.com/PatientsLikeMe and http://blog.patientslikeme.com]

The ALS Forum

The ALS Forum is a web-based collaborative effort to accelerate and enhance ALS research by providing both veteran ALS researchers, as well as those new to the field, with comprehensive cutting edge coverage of ALS research and drug development news and ALS research resources.
www.ResearchALS.org

Prize4Life, Inc.

Prize4Life’s mission is to accelerate the discovery of treatments and a cure for ALS by using powerful incentives to attract new people and drive innovation. Visit our website to find out how the next ALS breakthrough could be yours.
http://www.prize4life.org

Robert Packard Center for ALS Research at Johns Hopkins

The Robert Packard Center for ALS Research at Johns Hopkins is an international scientific operation dedicated solely to curing the disease. We are unique in our approach to fighting ALS, in that we combine and facilitate scientific collaboration and ALS research with fundraising for the development of new treatments and to finding a cure.
www.alscenter.org

NEALS Physical Therapy Committee

The committee promotes and encourages involvement of physical therapists in developing standards of care, evaluation, and assessment measures, and research both Physical Therapy specific and for clinical trials. If you have questions about strength, exercise, or assistive technology, we encourage you to contact Physical Therapists Sara Feldman (Sara.Feldman@tuhs.temple.edu), PT, DPT, ATP at Temple University or Peggy Allred (peggy.allred@cshs.org), PT, DPT at Cedars-Sinai.

VA Biorepository Brain Bank (VABBB)

The VABBB collects donated tissues from Veterans with ALS, PLS, primary bulbar palsy (PBP), or progressive muscular atrophy (PMA). These tissues are collected, processed, stored, and given to researchers for future scientific studies on ALS. Veterans without ALS, or other neurological conditions, are also eligible to participate with the VABBB, because it can help researchers learn more about the causes of ‪ALS‬.
http://www.research.va.gov/programs/tissue_banking/als/

ALS Finding a Cure

ALS Finding a Cure has created a series of videos to help ALS patients and their loved ones better understand the disease and the resources and support that will be needed as the disease progresses. In the following video series, you will hear from individuals living with ALS, their spouses, healthcare providers and professionals who shed light on the impact that this disease has on one’s life. This series will touch on some of the most common and relevant aspects of living with this illness, whether it be you or a loved one. It is our hope that these videos will empower you to be proactive about understanding and managing ALS.
http://alsfindingacure.org/content.php?page=videos